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Monday, December 16, 2019

16 December 2019 Update from Dr. A followup appt!



Good afternoon Family and Friends!!
I continue to feel like I have the best doctor!!!! 
8:30am appointment; U of M Masonic Cancer Center-
This is just clarifying what we already knew with a lot of words!!!
MAIN DIAGNOSIS LGSOC=LOW GRADE SEROUS OVARIAN CANCER. This is slower growing and less aggressive than some other cancers which is good. But it is less susceptible to chemotherapy which is not so good but still a good idea to be aggressive and use chemo per MD.
  • Positive side😊 – he said OK for California January 8, OK for Grannies trip to France in May, OK for Danube River cruise in June – NEED TO CANCEL 29 JANUARY VIETNAM TRIP – TOTALLY FINE WITH ME AS I WAS PRETTY SKEPTICAL ABOUT THAT ONE. He said it sounded like we live a good life😊
  • Chemotherapy – he recommended this even though it may not be as successful with the low grade which I have vs. high grade so we’ll see, pray and fingers crossed.  It could just mean more chemo later.  He said some people live decades I guess I’ll be voting in the next election!
  • I agreed to donate a little blood during the chemo thing for research and I also will receive two $20 Target gift cards – they will not forget that!!!
We have chosen to continue care at the UofM instead of Methodist Park Nicollet near us so we have the same staff and after April this group will no longer serve Park Nic as Park Nic want their own docs.  So chemo will be there and I chose to start as soon as I can and get the dumb thing over with!  I will have a intravenous port placed in my chest and have an IV infusion six times once every three weeks so 18 weeks total.  He said the main side effects will be fatigue and hair loss.  They will leave the IV port in for a year and should not cause problems and a “just in case” thing in case I need more chemo and if they took it out and needed another it would have to be in a different location.
  • Belly pain and bloating should be a lot better next week!!!!  YEE HAW!!  The remaining left side pain is due to closing the larger incision in the lower underlayers (muscle, fat etc) because they are bigger than the skin opening.  So I have one very long continuous stitch inside – ugh – but that’s why I feel the pulling type pain!
  • ORANGE HAIR FROM SURG BETADINE SOLUTION😊 he never saw that before and took a photo with his phone.  And since the chemo will cause full hair loss the goldy girl look will go away and he said insurance pays for a free wig – hmmmm – I kind of just like the chemo hat/headband things that I’ve seen a lot of. 
  • Reviewed pathology report – 6 pages long actually!!!!!:
Main Diagnosis:  Metastatic Low Grade Serous  cancer – it is serous not a typo!!
Involves both ovaries -, fallopian tube, uterus, omentum, left pelvic sidewall (peritoneum), outer surface of bladder, pelvic lymph nodes
Left ovarian tumor:  started here low grade serous neoplasm and moved on to other ovary and other places
Lymph nodes: right pelvic – in one of six nodes; left pelvic – in two of four nodes
Peritonal ascites fluid (bloating) – positive for malignancy
So there ya go – I’m happy to answer any question
Love to all and keep on praying and sending those good vibes!!!
dj
Dee


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